10.5   Establish procedures early in the survey lifecycle to ensure that all important files are preserved. Disseminating data in an accessible format can strengthen the research by allowing the community to verify or refute the findings, use it as a catalyst for addressing related concerns, and in the case of intervention development research, can provide additional data … 1.11   More than ten years ago, the began to develop a set of dissemination standards “to guide countries in the provision to the public of comprehensive, timely, accessible, and reliable economic, financial, and socio-demographic data.” These standards were considered best practices, but their implementation was completely voluntary, depending on the policies and wishes of each nation. The presentation of instrument documentation, so that users can track the logic of the questionnaire. Toolkit, Services Integration A German elite study was nearly lost to the academic public due to heritage issues. Consider how your dissemination might be perceived by different groups. Impact activities and dissemination may therefore be ongoing throughout the research lifecycle (including these later stages) and members of research ethics committees should have the necessary skills and expertise to ask critical questions when assessing a proposal's impact and dissemination … 2. Preserve sustainable copies of all key data and documentation files produced during the data collection process, as well as those made available for secondary analyses. Consider archiving collections in one archive, which would keep master copies of files in several locations but minimize the possibility of conflicting versions of data and documentation files. developed content. 5.3     ‘Don’t know’/’can’t choose’ responses may have different meanings in different countries based on different response styles. An effective data processing strategy focuses on the production of data files that will provide optimal utility for researchers. Additionally, the tool helps the user allocate resources to achieve the dissemination objectives. See Ethical Considerations for further discussion. Some examples of dissemination strategies are below. The results indicate that the social sciences have more developed policies than the medical and health sciences. 5.11   Whenever possible and expedient, make individual country datasets available in 3MC surveys. Staff from the project can describe the data, distribute documentation and sample data, and encourage researchers to make use of the data. The most straightforward way to reach out is to develop an effective online presence, ensuring that the data are easily located and acquired and that metadata and bibliographical citations are also available. The Community for Advancing Discovery Research in Education (CADRE), another NSF-funded resource center, has an excellent Dissemination Toolkit that provides tips for creating an overall project communication plan and a dissemination plan for select products. IFDO found that there was a growing awareness and interest in data sharing. Emphasize practical use of the study results. © 2002–2020 Rural Health Information Hub. 5.2.2    Consider disseminating data on removable media (e.g., CD-ROM or DVD) if appropriate. {2265844:NUAM2PXP};{2265844:THXKPNFI};{2265844:Y3GGKRR2};{2265844:WYYYNFA5};{2265844:56MZPUKP};{2265844:YQSMJYNV};{2265844:C54KDRPS};{2265844:TRE6EAUS};{2265844:NUAM2PXP};{2265844:4WUEFGS3};{2265844:WHW7WN2P};{2265844:NQWRR77B};{2265844:KHEHZKZY},{2265844:5CZRAUYN},{2265844:J6UQIBY9};{2265844:H77SEMSI};{2265844:ZR3KYVCE},{2265844:5DB6L8RD};{2265844:8I7528QG};{2265844:YBDU6ZXY};{2265844:F97XKZL7};{2265844:88BMWBK6};{2265844:73YJ2YAE};{2265844:U7PGAXS9};{2265844:56MZPUKP};{2265844:WFHIMYSQ};{2265844:Y3GGKRR2};{2265844:WYYYNFA5};{2265844:56MZPUKP};{2265844:TRLIEN7U};{2265844:TRLIEN7U};{2265844:WYYYNFA5};{2265844:77MUVBVK};{2265844:Y3GGKRR2};{2265844:YQSMJYNV};{2265844:WHW7WN2P};{2265844:LH34UMPN}, Study Design and Organizational Structure, Interviewer Recruitment, Selection, and Training, Data Processing and Statistical Adjustment. It involves the documentation of major steps in the data lifecycle, from initial planning to the production of final data files. Prevention Toolkit, HIV/AIDS Prevention and Treatment Toolkit, Prevention and Treatment of Substance Use Disorders Dissemination Plan Template; Guide Background; Dissemination Plan Template What kinds of research findings do you want to share (data, videos, images, etc.)? 2.4     Make certain that digital materials remain retrievable through constant refreshment of the media on which they are stored. Toolkit, Chronic Obstructive Pulmonary Disease Toolkit, Diabetes Prevention and Management electronic format , CD-ROM and paper publications such as PDF files based on aggregated data. 10.2   Consult with institutions, research associations, and analysts to develop appropriate quality standards. Data dissemination is the distribution or transmitting of statistical, or other, data to end users. 8.5.4    Preparing documentation in DDI format at the outset of a project means that the documentation will also be suitable for archival deposit and preservation, because it will contain all of the information necessary to describe all aspects of the corresponding data files. 8.1     Keep detailed records from the very beginning of the project and make every attempt to record important project events at the time they occurred. 10.7   Develop specific procedures for assessing disclosure risk to respondents, and execute these procedures whenever public-use files are produced. Dissemination of evidence in nursing is the spreading of evidence-based knowledge, research, and findings by nurses to other healthcare professionals or to the general public. an individual in a specific region whose household size is an outlier and who has an unusual marital history, which together reveal the individual’s identity). and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) 5.8     Provide a printable questionnaire that contains all variable names and values in an appropriate format. Data Dissemination . Producers may want to balance the amount of paradata they release with the need to maintain proprietary information about the data collection process. 2. Dissemination requires strict compliance to archiving, editing, publishing, and distribution protocols. Data producers and archivists must assure analysts that the data they provide accurately reflects the efforts of the data collection process, is trustworthy and fully documented, has no confidentiality concerns, and is securely preserved for future use. Creative methods of research dissemination. The Guide was developed based on the experiences of many health agencies in disseminating their data, and attempts to establish a set of general standards and practices. It is very important that major survey research producers or archives reach out to the user community effectively, in order to explain the structure of new datasets and to encourage the greatest possible use. Please contact us if you wish to publish any of this material in any form. Toolkit, Care Coordination Since dissemination policies may differ among countries, it is important that data producers take the necessary steps to make their collections as accessible as possible to members of the research community. In order to ensure that researchers have access to the greatest amount of data possible without compromising respondent confidentiality, data producers, when appropriate, must make every effort to create both public- and restricted-use data documentation files, and make these files available to the research community through secure and predictable channels. Wider adoption of evidence-based, health promotion practices depends on developing and testing effective dissemination approaches. 1.2     Identify any documents that should be published in their original language, such as individual country questionnaires, codes, verbatim responses, and nation-specific data files. Contact your funding programme for advice. 7.2     Complex data sets often require specialized training. • Supports dissemination of evidence-based strategies to improve health • Research conducted at UW-Madison or Marshfield • Supports activities such as: • Targeted distribution of research findings , products or materials to a specific audience • Development of materials in preparation for dissemination and/or implementation activities Different dissemination strategies may need to be employed in different countries/cultures. 7.1     Organize workshops at relevant professional organizations or attend conferences where 3MC research is a focus soon after the data are released in order to bring early users together to discuss important preliminary results, as well as to ensure that the data are used effectively and that any problems with the data are recognized and corrected. 5.6     Standardize all missing data values, unless it is not possible to do so due to different cultural understandings (flag such issues carefully). 10.4   Test archived files periodically to verify user accessibility. Additionally, the tool helps the user allocate resources to achieve the dissemination objectives. 3.2.1    Identity disclosure results from using a single identifying characteristic or a combination of characteristics to discover an individual respondent (e.g. Data may be disseminated publicly without any restrictions (as public-use files) or only to certain users under specific conditions (as restricted-use files). It concluded that more accurate and reliable statistical information is now being produced by more nations than ever before, but also recognized that dissemination mechanisms are not fully developed in many locations. Standards should be developed with researchers to ensure they meet the needs of the relevant discipline . Disseminating data from multinational, multicultural, or multiregional surveys, which we refer to as ‘3MC’ surveys, can include specific processes, such as standardization, harmonization, and multi-lingual documentation, which may not apply to surveys done in a single country. In disseminating qualitative data, researchers have an array of presentational styles and formats to choose from that best fit their research purposes, such as drama, dance, poetry, websites, video and evocative forms of writing. Consider disseminating research findings. Make such datasets accessible via Web-analysis. Similarly, data from the World Mental Health Survey is available to policy makers in participating countries . Review: Answers 1-2 . Disseminating research in journals t … 8.4.2    Identify appropriate tools that will access and create XML-coded information in a natural language environment, such as a browser displaying a Web-based form generator. The publication and dissemination of research can sometimes have unintended consequences on individuals and communities. These users may include government officials, academic researchers, policymakers, and the general public. Any plan to disseminate survey data must include very specific procedures for understanding and minimizing the risk of breaching the promise of confidentiality that is made to respondents at the time of data collection. Send newsletters/articles or reports to local and national government representatives. 3.1     Be aware of, and adhere to, the different legislation for disclosure control in each country. A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to be created and the method of dissemination. Sharing data reinforces open scientific inquiry, encourages diversity of analysis and opinion, promotes new research, makes possible the testing of new or alternative hypotheses and methods of analysis, supports studies on data collection methods and measurement, facilitates the education of new researchers, enables the exploration of topics not envisioned by the initial investigators, and permits the creation of new datasets when data from multiple sources are combined.” This policy has resulted in more data becoming available in the public domain. Disclosure resulted from matching data to a local news website . Make a dissemination and data preservation plan that includes archiving, publishing, and distribution, early in the project lifecycle. Toolkit, How to intellectual property issues. However, the implementation varies across countries and research funders. DISSEMINATION OF FINDINGS: PRESENTATIONS AND PUBLICATIONS Anne Walling, MB, ChB Professor Terry Ast Research Analyst Department of Family and Community Medicine The University of Kansas School of Medicine-Wichita (316) 293-2607 awalling@kumc.edu tast@kumc.edu Funders want to ensure that their money is spent in the best way possible and Dissemination is the process by which producers of microdata from surveys and from public and official statistics make their data available to other users. Two metrics are the Trusted Repository Audit Checklist (TRAC) and the Trusted Digital Repository Checklist (TDR), or ISO 16363 . The peer-reviewed and grey literature was systematically reviewed to understand … The key goal of disclosure risk analysis and processing is to ensure that the data maintain the greatest potential usefulness while simultaneously offering the strongest possible protection to the confidentiality of the individual respondents. 7.3     The Demographic and Health Surveys have an online user forum for users to post and discuss issues. A proper disclosure protocol includes an analysis of the most likely outside sources which might allow for the identification of respondents or households. We want to ensure that the research we fund has the maximum benefit for patients, the public and the NHS. The establishment of links to the documentation of related surveys (e.g., those conducted in other countries) with variable text viewable in the native languages assists analysts who want to study relationships among all of the survey items. 10. dissemination. Thus, foundations and public funders often ask for free data access (i.e., they deny the principal investigator’s sole ownership on collected data). A research study is not complete until the study findings have been disseminated via presentations at professional forums and published in a peer‐reviewed journal and where appropriate recommendations regarding how the research findings could … 9.1.4    Remember that there may be a need to disseminate findings several times, as new information is collected and updated. This may include salary, translation, printing, mailing, and/or meeting costs (see Tenders, Bids, and Contracts and Translation: Management and Budgeting). 3.4     Search systematically in the data file for sensitive information such as transcripts of open-ended answers, including International Standard Classification of Occupations (ISCO) occupational variables, identification of primary sampling units (PSUs), birth dates, income, or housing and dwelling information. This section of the chapter discusses dissemination in terms of presenting results of the study and considering who will use the information and why. 10.8   Produce and implement procedures to distribute restricted-use files if applicable. Dissemination of additional types of data, such as quality or benchmarking data, can be equally important in advancing the evidence base to support nursing interventions and … 4.1     Make data files fully available to the research community as soon as possible, within the confines of how the project is organized and financed. 3.8     Use appropriate masking procedures to preserve respondent confidentiality while also trying to optimize the usefulness of the resultant data file for analysis. 5.7     Create complete and concise variable and value labels which will provide researchers with clear descriptions of their analytic results. DDI XML should ideally be generated by the CAI system used to collect data, but can also be collected from paper-and-pencil surveys through access to the information in the original questionnaire. © 2020 The authors of the Guidelines hold the copyright. Research on dissemination addresses how information about health promotion and care interventions is created, packaged, transmitted, and interpreted among a variety of important stakeholder groups. 10.6   Create digitized versions of all project materials whenever feasible. Dissemination can be powerful when adding rhetoric or other forms of persuasiveness to the speech. Potential audiences and effective methods include: 9.2.2    Community members/target populations: 9.3     Consider the ethical and legal policies within each country and culture. All rights reserved. Organization(s): Agency for Healthcare Research and Quality, How to 4.3     Despite general agreement on the advantages of making data accessible to other researchers, as well as strong data-sharing cultures in many nations, too few social science data collections are effectively preserved. The event was a collaboration with engage@liverpool at the University of Liverpool on 12 Sept 2019. – – – Data and documentation may be disseminated in various formats, but the goal should be to provide complete information in a non-proprietary format that is amenable to long-term preservation. 1. Think about what the risks are to your dissemination plan e.g. 7.1     In order for participants to fully benefit from the experience, training programs must be well-planned, with a high level of substantive, methodological, and technical expertise. If it is not possible to store materials at multiple sites, preserve at least one copy in a different location. XML marked up information gets its full potential when coupled with a database management system and powerful front end tools. 4.2     Remain cognizant of any copyright restrictions the data may have. 1.7     Documentation for the World Mental Health (WMH) Survey is done using the Survey Metadata Documentation System designed by the WMH Data Collection Coordination Centre . We want to ensure that the research we fund has the maximum benefit for patients, the public and the NHS. 2.3     Data producers should make every effort to extract data that is on media which may no longer be easy to read. In the age of open research, don’t just broadcast. 9.2     Make research results accessible to the desired audience(s). The Agency for Healthcare Research and Quality (AHRQ) Effective Healthcare (EHC) Program funds individual researchers, research centers, and academic organizations to work with AHRQ to produce effectiveness and comparative effectiveness research for clinicians and consumers.1 Comparative effectiveness research (CER) compares the benefits, harms, and effectiveness of health interventions for the prevention, diagnosis, treatment, and management of clinical conditions and the improvement of he… be created and the method of dissemination. Dissemination of research findings in the clinical nursing literature occurred at two levels: through articles that reported studies of potential value to the nurse's practice and citations to research publications within articles. The recode datasets contain the same data as the raw datasets, but in a standardized format where variable names and definitions are, wherever possible, consistent across all surveys. A study analyzing data across 3 countries found that factors making it easier to disseminate research findings such as a unit/department/school with a formal communication dissemination strategy were rarely available. It is particularly important for unique data that cannot be readily replicated (see here). Dissemination is essential for uptake, and uptake and use of research findings is crucial for the success and sustainability of practice-based research networks (PBRNs) in the long term. 5.2.1    Produce setup files and ready-to-use ‘portable’ files in SAS, SPSS, and Stata to address the needs of those who seek to do intensive statistical analyses with particular software packages. Example modules include ‘Religion,’ ‘Role of Government,’ and ‘Leisure Time and Sports’. 4.5     Establish clear policies for how researchers may access restricted data files by creating a set of application materials and restricted-use data agreements that specify how researchers can obtain and use such data . A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to be created and the method of dissemination. 10.11 Discuss with users their experiences working with the data. Participating in the development and promotion of digital preservation community standards, practice, and research-based solutions. Produce data files that are easy for researchers to use. Document In disseminating qualitative data, researchers have an array of presentational styles and formats to choose from that best fit their research purposes, such as drama, dance, poetry, websites, video and evocative forms of writing. 5.4     Established 3MC studies share their data in a variety of ways: 5.4.1    The publicly releases all data and documentation via their website, one year after the completion of fieldwork. 3.1     With the enhanced emphasis on privacy in almost all countries, confidentiality reviews of microdata are increasingly important, if not indispensable, to assuring the future availability of public-use data. 7.3.1    Without specialized instruction and training, analyses of cross-cultural longitudinal data and repeated cross-sectional data are particularly challenging. Website Determining who is using the data and why is important to consider as part of a comprehensive dissemination strategy. As resources permit, data producers must strive to provide documentation, commonly referred to as metadata, on all aspects of the survey or statistical lifecycle, from initial planning through final data production and its release to the research community. For dissemination considerations for specific types of programs, see: The Rural Philanthropy Toolkit discusses dissemination 3.2     Disclosures can be categorized as either identity disclosure or attribute disclosure . under Grant Number U56RH05539 (Rural Assistance Center for Federal Office of Rural Health In this blog post we share four creative methods of research dissemination. These procedures might include top- or bottom-coding of key demographic variables such as income, removing data for very sensitive variables, and swapping data values between similar cases . 7.5     Track all user questions in a database that creates an accumulating knowledge base and that can also serve to generate frequently asked questions (FAQs). 8. 5.4     Consider creating simplified versions of datasets for use by the wider public, such as journalists and policymakers (i.e., by creating recode variables, such as age of respondents in groups or income in groups; removing detailed information such as household lists; setting missing data properly; etc.). These are inspired by the knowledge café organised by the Social Research Association North. the dissemination objectives. There are a variety of methods that can be utilized which rely on centralized depository. Data sharing allows scientists to expedite the translation of research results into knowledge, products, and procedures to improve human health. Clear procedures must be in place to make certain all files remain readable as statistical and word processing software systems change over time. Some may delegate this task to a data archive, but a joint approach, with data archives providing basic user support and data producers addressing more complicated substantive questions, often works best. There are many reasons to share data from NIH-supported studies. Encourage participation. Dissemination of research findings is an important part of the research process, passing on the benefits to other researchers, professional practitioners and the wider community. intellectual property issues. There are also a number of issues for NSOs and other providers and collectors of data to consider as they formulate and implement Disseminating research in journals t … Prioritize contacting agencies that aided with participant recruitment and/or serve the target population. In this context, there is no real substitute for intensive training and ongoing user support. Organization(s): Agency for Healthcare Research and Quality, Access to Care for Rural People with Disabilities Such files may include recoded variables to summarize information contained in many questions or special constructed variables that producers feel will aid researchers in their analyses. Date: 1/2011, Daily and weekly custom alerts also available. Dissemination of research findings is becoming more important for scientists, since journals start to encourage them to invest extra effort in reaching wider audiences. Disclosure analysis has become increasingly important as more and more datasets become available online and as the possibility of linking survey data to other contextual and administrative databases has grown exponentially . Dissemination Planning The value of data depends on the quality of the data itself. 9.1     Traditionally, researchers disseminate work in peer-reviewed journals. 3.3     The practice of reporting examples of privacy violations, particularly in the healthcare field in the United States, has increased awareness of this issue . 2.8     Make test runs of copied data to ensure error-free copy processes. Committee members who had participated in research studies were concerned about the lack of accessible findings and developed the above points in order to address dissemination needs. Create comprehensive training, outreach, and user support programs to inform the research community about the dataset. 5.10   Create special subsets of data that take advantage of the longitudinal richness of long-term collections and provide unique opportunities to study important social, political, and economic issues from different perspectives, particularly with regard to the changing characteristics of the sampled respondents. 4.7     Create special files for researchers that cannot be matched with public-use files (for example, provide finer grained local information and simultaneously change respondents’ IDs and other matching variables). Dissemination can be powerful when adding rhetoric or other forms of persuasiveness to the speech. 1.3     Have a system in place to preserve all major planning and operational documents as soon as they are created. Given the large number of participants, and rich phenotypic data, we are eager to disseminate the data and project findings in an engaging, innovative manner. For example, many surveys were conducted in Latin America and Africa in the 1960s and 1970s which might offer opportunities for interesting comparative analyses with the more recent and much more popular Latino and Afrobarometer surveys. 2.7     Investigate the protocols and standards of digital repositories, such as availability of extracting data and in the areas of multi-site storage, security, and costs. Data collection methods or sampling frames often change between different waves or in different countries, and weighting variables may require extensive descriptions. 8.5.2    The XML file can be viewed with Web browsers and lends itself to Web display and navigation. Treating all of these responses as missing data may lead to unwarranted conclusions about the attitudes of whole populations . Consider how your dissemination might be perceived by different groups. 8.2     Even though the amount of documentation that 3MC studies provide has increased in recent years, there is still a need to provide users with more information about the entire survey lifecycle, particularly through detailed quality profiles (see Survey Quality). 7.7     Establish moderated user forums to provide the foundation for an online community of researchers and students who can discuss their experiences using data and learn from each other. 6.1     Data usage increases when the data are easy to find and when users know of publications scholars have produced from the data. An additional aspect of dissemination is how to share research findings with interested parties. 8.4     Consider adopting the standard for producing metadata. Trusted Repository Audit Checklist (TRAC), Trusted Digital Repository Checklist (TDR), Survey of Health, Ageing, and Retirement in Europe (SHARE), Complying with the Open Archival Information System (OAIS) in the U.S. and similar standards in other countries which have their own digital preservation standards and practices. Individual countries may have different dictates on sharing data within and between countries. 5.2     In order to provide optimal utility for researchers, produce a variety of products for varied constituencies. The Model for Dissemination of Research provides a framework through which to synthesize lessons learned from research to date on the process of translating research to US policymakers. dissemination of research. Dissemination of research findings is becoming more important for scientists, since journals start to encourage them to invest extra effort in reaching wider audiences. 7.3     Hold training workshops in different countries to ensure that novice users have a chance to learn about the data from experts and, if possible, from the data production team itself. Dissemination is an essential component of the quality improvement cycle, ensuring the best available evidence is incorporated into routine practice with the smallest possible delay. 6.5     Encourage data archives to create metadata records for surveys they do not preserve and distribute these records to facilitate their discovery and use. 10.1   Establish a quality compliance protocol: an overall plan for regularly monitoring the integrity and validity of all data and documentation files that are available for secondary use. More is involved in the dissemination process than merely providing data access to interested researchers. Toolkit, Health Promotion and Disease Tool In addition, provide data in a non-proprietary format so that users may utilize the statistical package of their choice. Preserve sustainable copies of all key data and documentation files produced during the data collection process, as well as those made available for secondary analyses. Dissemination Planning To ensure that the project results will be used, research projects must develop a dissemination plan that explains how the outcomes of the An ideal preservation storage situation includes a minimum of several offsite copies of digital materials undergoing regularly scheduled backups. 8.3     For 3MC surveys, provide complete information about how the survey was conducted in each country or study population, and describe specific procedures and practices involving data collection and data processing activities. Disease Research, Bangladesh (Icddr,b) and the TRAction project in Dhaka and the Dodowa Health Research Center of the Ghana Health Services as well as Ayishatu Gibrin and Najoua Kachouri for their contributions in organising the pilot workshops. The intent is to spread information and the associated evidence-based interventions. 4.6     Distribute restricted files through signed data use agreements. An advance briefing is offered to top policy makers in the executive and legislative branches of participating countries; immediately thereafter, results are released publicly to the national and international media, civil society, and donors. Develop finding aids to guide users in their quest to locate data collections they want to use. 6.3     Display the abstracts of the publications with links to the full text whenever possible, in order to realize the full potential of the online research environment. 6.4     Dedicate staff time to continuously searching journals and online databases to discover new citations where the data have been used. 8.4.1    Define a database structure that will be used to store XML elements. Ensuring that digital content can be provided to users and exchanged with archives without damaging its integrity. A checklist is provided to guide agencies in developing a comprehensive Web dissemination system. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. 9.1.3    Get input from study participants, community representatives, and other potentially interested parties on the preferred forum for viewing findings, such as press releases, websites, newsletters, or conferences. The capability to query for specific information is critical to all data dissemination systems, from individual data producers with only a few data collections to social science archives with thousands of such collections. Research, especially where reported in a preliminary or incomplete form or to a lay audience, may be liable to misinterpretation. Research Dissemination; Dissemination Plan Examples; Dissemination Plan Template. Additionally, the tool helps the user allocate resources to achieve This will assist analysts in understanding the goals and purpose of each survey. 5.4.2    The releases anonymized data through their public website within one year of the onset of data collection. Pre-research Arrange funding for dissemination costs The work of dissemination begins before a research project is even underway. Organization(s): Agency for Healthcare Research and Quality 8.2     Update documentation continually during the entire lifecycle of the project, and preserve old versions of key files. The peer-reviewed and grey literature was systematically reviewed to understand … Create an Effective Brochure, Publishing project findings in national journals and statewide publications, Presenting at national conferences and meetings of professional associations, Presenting program results to local community groups and other local stakeholders, Creating and distributing program materials, such as flyers, guides, pamphlets and DVDs, Creating toolkits of training materials and curricula for other communities, Sharing information through social media or on an organization's website, Summarizing findings in progress reports for funders, Disseminating information on an organization's website, Discussing project activities on the local radio, Publishing information in the local newspaper, Hosting health promotion events at health fairs and school functions, Using the 2-1-1 system to publicize available services and resources, Submitting information about a rural health project to be included in the Rural Health Information Hub's, State associations of county and city health officials. Some examples include: 5.10.1  The project integrated a subset of data from the Demographic and Health Surveys for women of childbearing age and their children from 18 countries. Research has the potential to influence US social policy; however, existing research in this area lacks a coherent message. 8.5.3    Because the content of each field of the documentation is tagged, the documentation can serve as the foundation for extraction and analysis programs, search engines, and other software agents written to assist the research process. 10.9   Provide data files in all the major statistical software package formats and test all content thoroughly before they are made available for dissemination. Make quality control an integral part of all dissemination steps. 2.6     At a minimum, store a copy of all data and metadata files in software-independent formats (e.g., ASCII or XML) which, with proper accompanying documentation, can be read into all major statistical packages. Data users may be policymakers seeking summary information, analysts browsing for new data sources, or individuals seeking summary analytic information or wanting to quickly download specific variables. Research activities supported by public funding are rarely considered complete until the results have been made widely available. 9.2     The issues reports or bulletins within three months of the end of fieldwork. 7.6     Create tutorials, some of which may be offered in video format, to provide help in using the data, the online analysis system, and the major statistical software packages. Good user support will prevent obvious misuse or possible misunderstanding of the structure and content of the dataset. The materials that need to be preserved and kept available to members of the research community include such objects as public-use data and documentation files (including key files used in their construction), copies of the data collection instruments, user guides, information about the data collection process, and reports on field operations. 1.8     Countries participating in the World Values Survey are required to submit documentation of their survey methods and data to a central data archive no later than three months after fieldwork has been completed. If appropriate repositories are not available, producers may need to organize dissemination of their materials themselves. 8.1.2    The produces an annual survey documentation report, as well as a report summarizing fieldwork and any deviations for each round. 4. Each national partner is responsible for entering and cleaning their own data and delivering a clean SPSS data set. This tool was developed to help researchers evaluate their research and develop appropriate dissemination plans, if the research is determined to have "real world" impact. However, practitioners, as well as the general public, rarely have the time, or even ability, to read these types of articles. A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to Such files have been thoroughly checked and cleaned, possess uniform and consistent coding strategies, use common formats, and address the potential research needs of secondary analysts. Rockville, MD: Agency fo… Data are to be sent unweighted, but descriptions of weighting procedures should accompany the datasets. Name at least 4 purposes for data dissemination. These may incorporate data protection plans, formal licenses, and travel to a special facility at which researchers can access the data in a very controlled environment. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. should any endorsements be inferred by HRSA, HHS or the U.S. Government. 6. This may include surveying users, conference presentations, and collecting user data. 1. A review of data producers’ mission statements, dissemination policies, and experience around the world underlines the importance of and reasons for giving access to microdata files. Participants also have the option to donate a DNA sample. 1.4     Consider including information about the survey process when disseminating data, documentation, and reports. What are the 5 components of data dissemination? 5.4.4    Living Standard Measurement Study Survey (LSMS) data are usually available within twelve months of the end of fieldwork and are published on the World Bank website for the LSMS study, as well as each country’s statistics office website. 2.9.1    Such repositories make an explicit commitment to preserving digital information by: 2.10   If no national or public social science data archives exist, consider depositing data with an archive in another country, or investigate the possibility of doing so with a national statistical agency or certified provider. Dissemination is more than storing or archiving data. Responsibility for the views expressed and for any errors of fact or judgment rests with Margaret 3.3     Implement a disclosure protocol. Phone: 1-800-270-1898 In doing so, data producers do their best to ensure that their data collections will remain available to the research community. Policy Cooperative Agreement). The ‘no code in data file’ indicates either an interviewer error or error in data editing. 1.10   The conducted an informal Web survey of institutional data policies in the social sciences in 2013. Does your research contain sensitive or protected data? After a student is enrolled in the project, the student is sent an optional follow-up survey each spring. 5.10.2  The created modules on specific topics that integrated data for repeating years and across countries. Organization(s): University of Nebraska Dissemination refers to “a planned process that involves consideration of target audiences and the settings in which research findings are to be received and, where appropriate, communicating and interacting with wider policy and…service audiences in ways that will facilitate research uptake in decision-making processes and practice” (Wilson, Petticrew, Calnan, & Natareth, … 4.4     Consider the creation of less thoroughly masked versions that can be distributed under restricted-use contracts or made available within a research data center or ‘enclave’ (i.e., a secure environment in which the user has access to restricted data and analytic outputs under controlled conditions). 10.10 Designate resources to provide user support and training for secondary researchers. Although focused on microeconomic data, the , for example, established a set of guidelines on macroeconomic data for member countries to follow in order to provide the public with “comprehensive, timely, accessible, and reliable economic, financial, and socio-demographic data” . Creation and testing of the tool is described in Development of a Planning Tool to Guide Research Dissemination. Releases must be approved by a core partner. 8.5.5    There are many examples of projects that utilize DDI-compliant metadata, both at the individual study level and in multi-study data repositories . The Fund published a report about the success of this initiative over the first ten years of the initiative. 5.4.5    Survey of Health, Ageing, and Retirement in Europe (SHARE) data are distributed through their Research Data Center. 1.9     Many institutions which provide research grants for data collection now strongly recommend that grantees prepare a data sharing plan as part of the proposal process. Ask participants if and how they would want to receive results. Goal: To ensure that survey and statistical research teams in all cultures and countries involved in a 3MC survey follow accepted standards for the long-term preservation and dissemination of data to the social science research community and the wider public. Contact your funding programme for advice. This is particularly important if removable media (i.e., tapes) are used for storage, since formats and the machines required to read these media change quickly over time. 2.9     If possible, work with a trusted digital repository, such as a national or public social science data archive, to preserve all study materials. The creation of question banks, comprising all items asked in multi-year studies, years items were asked, differences in question wording, and so on. In countries were national data archives do not exist, data producers may want to partner with university social science departments or research centers to increase awareness and use of important datasets. 2. Usage. Relevance to clinical practice. 5.5     Make a thorough investigation of any undocumented codes or inconsistent responses, and whenever possible, provide labels such as ‘not ascertained’ if there is no alternative. Version control is necessary for users to replicate previous analysis or to test analysis done by others. 10.1   The in the United States worked with other federal agencies to do a study of Web-based systems for the dissemination of health data, and produced a Guide for Public Health Agencies Developing, Adopting, or Purchasing Interactive Web-based Data Dissemination Systems. Participants also have the option to donate a DNA sample. DHS also provides a step-by-step introduction to using DHS data, a tabulation plan, and many other resources for analyzing DHS data. Once the dissemination objective and the audience are identified, there are a variety of ways to share the It is designed to help you to plan your dissemination and give your research every chance of being utilised. The use of this standard, which is based on the use of Extensible Markup Language (XML), allows for specification of each metadata element (e.g., title of the survey, name of the principal investigators, type of sampling) for storage and future searching. More advice on dissemination. Advances in Patient Safety: From Research to Implementation. • Supports dissemination of evidence-based strategies to improve health • Research conducted at UW-Madison or Marshfield • Supports activities such as: • Targeted distribution of research findings , products or materials to a specific audience • Development of materials in preparation for dissemination and/or implementation activities 6.1     Create a robust search engine to query the fielded metadata so that the user can find variables of interest efficiently. Users should be able to follow the changes made from one version to the next. Establishing communications message, defining the audience, selecting the communication channel, marketing the message, evaluating the impact . Preservation is an important part of the survey lifecycle, a prerequisite for long-term access to valuable physical objects and digital materials. those of the authors and should not be construed as the official position or policy of, nor The CAB CAPS guidelines were created by a committee of activists, teachers, and other stakeholders. This can be incorporated as a question in the survey instrument. 3.9     Document all confidentiality assurance processes and make a final assessment about the anonymity of the data file. Consider offering multiple venues, if possible. Dissemination Planning To ensure that the project results will be used, research projects must develop a dissemination plan that explains how the outcomes of the 9. Organization(s): Agency for Healthcare Research and Quality Dissemination Products Formal evaluation reports Press release or issue briefs Promotional products such as brochures, posters, billboards, flyers, or videos Presentation (slide or poster) Peer-reviewed article Data collection tools Success stories/Lessons Learned Dissemination Mechanisms Email … In 1993, the Royal College of Psychiatrists' research unit undertook a … The in the United States provide the following justification for their emphasis on dissemination: “data sharing promotes many goals of the NIH research endeavor. [1] [2] There are many ways organisations can release data to the public, i.e. How to disseminate your research: Getting your message heard - and used This guide is for researchers who are applying for funding or have research in progress. It aims to help governments, research support and funding organizations, research institutions, and researchers themselves in dealing with challenges in improving the international access and sharing of research data. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. There are many datasets that would be of interest to secondary analysts if the analysts only knew about them. Making the attempt to disseminate results in this way provides more benefit to those who funded the research project, and encourages discussion about the strengths and weaknesses of the original data. 7.3.2    These training courses can be brief half-day or one-day sessions at the time of professional meetings, or they can continue for longer periods (e.g., three- or five-day sessions with a more detailed focus). Relevance to clinical practice. Create an Effective Brochure Nations also have internal challenges and constraints in addressing dissemination goals from resource constraints, shifting priorities, and their ability to generate periodic and timely statistical data. 7.8     While all of these procedures can increase the effective use of 3MC datasets, each country must decide on which steps would be most beneficial for their own research communities. The main elements of our framework are 1) a close partnership between researchers and a disseminating organiz… Research may also be misused to cause 1.3     The Demographic and Health Surveys Program (DHS) provides ‘standard recode’ datasets to users. 2.2     Some earlier studies, such as older Eurobarometer surveys, did not preserve individual country data, and thus issues about harmonization emerging some decades later could not be easily settled. 1.1     For multi-lingual surveys, decide on the standard documentation language to be used. National partners are responsible for either the scanning or storing of their own questionnaires. 1.6     Master copies of all important Living Standard Measurement Survey (LSMS) files are kept in a separate, backed-up archive. Dissemination also requires the long-term availability of data and documentation files through constant updates to hardware and software and possible changes in management and staff. Documentation must include a completed methodology questionnaire, a report of any questions omitted or added to the original official questionnaire, a report of additional and/or country-specific codes to any questions, official demographic statistics, weights used, and a copy of the original country questionnaire. 1.1     All studies must develop a system for preserving and storing materials. 10.3   Check all dissemination production steps throughout. [Internet]. GWI is geared toward industry, investors and stakeholders in water management. More advice on dissemination. To assist in developing these approaches, we created a practical framework drawn from the literature on dissemination and our experiences disseminating evidence-based practices. 5.3     Format the data files in a way that permits access through a wide variety of statistical packages, all of which will produce the same results no matter how complicated the analysis requested, particularly with any variable where decimal precision is an important consideration. In some settings, this may be just an SPSS portable file, but in others, data producers and/or archives might need to create the same file in a variety of formats, particularly if a standard database conversion package such as STAT-TRANSFER is not available. For more information on data processing techniques used preceding dissemination, see Data Processing and Statistical Adjustment. 2.5     Implement a system of version control to maintain older versions of important data and documentation files. 7.2     Maintain a presence at professional meetings even after the data have been available for a long time. 4.3     Provide access directly by the data producer if resources permit, but always send copies to a trusted digital repository for permanent preservation as well, in case the data producer should cease to provide access at some point in the future. 5.4.6    The World Values Survey provides data only to participating countries for a period of two years after fieldwork has been completed; after this period, the data are made available to the worldwide social science community in the form of data archives. 5.2.3    Clearly identify the master version and provide access to any previously released versions. 3.2.2     Attribute disclosure results from using a combination of indirect characteristics associated with an individual (e.g. Some examples include: 8.1.1    The Demographic and Health Survey provides their questionnaires and manuals via their website.